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41 yr-old GBM patient diagnosed April, 2019

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  • 41 yr-old GBM patient diagnosed April, 2019

    I'm Aaron, and I got my GBM diagnosis in April of 2019. As I write this, it's been almost 7 months since diagnosis and I've had two clean scans (due for a third in a week). I'm on a slightly modified version of the CUSP9 cocktail protocol (you can read more about my diagnosis in the "Newly Diagnosed forum).

    To stay sane (and feel connected to people) I write about my experiences on my blog: http://amhoov.org.

  • #2
    Hi AAron I trying to post as per Al's request of all of us who were on the yahoo groups feed. I was diagnosed in Jan 2017, I had a small recurrence in Sept 2018 and had gamma knife and my scans have been stable since then I have another scan tomorrow. I was diagnosed at age 48 and am now 51.

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    • #3
      Originally posted by JRo View Post
      Hi AAron I trying to post as per Al's request of all of us who were on the yahoo groups feed. I was diagnosed in Jan 2017, I had a small recurrence in Sept 2018 and had gamma knife and my scans have been stable since then I have another scan tomorrow. I was diagnosed at age 48 and am now 51.
      Good luck on the scan!

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      • #4
        Originally posted by Aaron Hoover View Post
        I'm Aaron, and I got my GBM diagnosis in April of 2019. As I write this, it's been almost 7 months since diagnosis and I've had two clean scans (due for a third in a week). I'm on a slightly modified version of the CUSP9 cocktail protocol (you can read more about my diagnosis in the "Newly Diagnosed forum).

        To stay sane (and feel connected to people) I write about my experiences on my blog: http://amhoov.org.
        I read some of the blog.. I love fishing too! I just got back from a fishing trip this afternoon - caught 18 striped bass!
        By the way - this forum has a section for BLOGS. anyone can start one here!


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