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My husband was recently diagnosed with a grade 4 glioblastoma. Seizures were first indication and saw non enhancing mass in left temporal lobe. Recently the mass enhanced and was seen to grow a bit more. The surgeon suggested a laser ablation (due to being in left temporal lobe) and biopsy which went very well. Husband is doing well at this time and on Keppra plus dexamethasone (tapering down post surgery). We are looking into clinical trials and therapies. Doctors don't seem to think much of alternative medicines. But I have started giving him turmeric (with black pepper), black seed oil, two cloves of raw garlic (and lot more cooked) etc.
I want to add Boswelia to this (is there an issue ?).
The current proposal is temodar and radiation (simultaneously). We are seeing alternate opinions and options. Since it was laser ablation, it is likely that there are regions around that (only the enhancing area was ablated) has cells. After the diagnosis, we are wondering if we should also do surgical resection before therapy. But we are told it might reduce QOL. Any suggestions appreciated.
We were also told that Optune could be available (either to try during or after radiation) as part of a clinical trial here. It does seem to reduce QOL a lot and I am worried if my husband may not be able to exercise and sleep well etc and that may negatively impact his recovery. Are there other trials we could participate or consider? We are hoping for more suggestions before starting. Methylation status is not known yet.
iDH-1 is negative. No enough tissue was available after biopsy to try dendrite cell methods.
Since it appears from literature that laser ablation opens blood brain barrier for a few weeks, we are wondering what else we could do quickly to utilize this opportunity.
Husband is very healthy otherwise. I read about mushroom extract etc. and want to try more such products. Too many questions here.. But hoping to hear suggestions on this.
I want to add Boswelia to this (is there an issue ?).
The current proposal is temodar and radiation (simultaneously). We are seeing alternate opinions and options. Since it was laser ablation, it is likely that there are regions around that (only the enhancing area was ablated) has cells. After the diagnosis, we are wondering if we should also do surgical resection before therapy. But we are told it might reduce QOL. Any suggestions appreciated.
We were also told that Optune could be available (either to try during or after radiation) as part of a clinical trial here. It does seem to reduce QOL a lot and I am worried if my husband may not be able to exercise and sleep well etc and that may negatively impact his recovery. Are there other trials we could participate or consider? We are hoping for more suggestions before starting. Methylation status is not known yet.
iDH-1 is negative. No enough tissue was available after biopsy to try dendrite cell methods.
Since it appears from literature that laser ablation opens blood brain barrier for a few weeks, we are wondering what else we could do quickly to utilize this opportunity.
Husband is very healthy otherwise. I read about mushroom extract etc. and want to try more such products. Too many questions here.. But hoping to hear suggestions on this.
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